Not much to say other than Tyler seems to be getting a little bit better each day.
He's a little bit naughty and a little bit nice.
All he seems to want is to have his story books read to him and to play with the squiggle ball and his 'Wrinkles' while looking out his bedroom window.
Saturday, June 27, 2009
Wednesday, June 24, 2009
home at last
Well -- Tyler came home this afternoon.
He's so happy to be here.
Woo hoo!
He's doing all his old tricks.
Fist shaking.
Woo hoo to all the baseball players.
Telling Allie the kitty to get out of his room.
And -- most importantly -- giving lots of kisses and hugs.
Here's hoping he stays here for awhile.
I'll post more soon when I have a moment to think.
He's so happy to be here.
Woo hoo!
He's doing all his old tricks.
Fist shaking.
Woo hoo to all the baseball players.
Telling Allie the kitty to get out of his room.
And -- most importantly -- giving lots of kisses and hugs.
Here's hoping he stays here for awhile.
I'll post more soon when I have a moment to think.
he needs to come home . . .
Well Tyler is being Tyler. And anyone who knows Tyler also knows that means it's time to come home.
Tyler is pulling the heart monitor leads off his chest -- he won't leave the trach collar on -- he doesn't want to watch T.V. -- he doesn't want to have his milk in his tummy -- he doesn't want anything!
He's cranky and trying to climb out of bed.
Actually he's doing much better. One of his medications had to be adjusted and this has helped a lot.
Unfortunately he had a two-minute seizure on Tuesday morning which delayed his homecoming. He was scheduled to be sent home yesterday afternoon.
We'll wait and see if today will be the day to come home.
Fingers crossed!
Tyler is pulling the heart monitor leads off his chest -- he won't leave the trach collar on -- he doesn't want to watch T.V. -- he doesn't want to have his milk in his tummy -- he doesn't want anything!
He's cranky and trying to climb out of bed.
Actually he's doing much better. One of his medications had to be adjusted and this has helped a lot.
Unfortunately he had a two-minute seizure on Tuesday morning which delayed his homecoming. He was scheduled to be sent home yesterday afternoon.
We'll wait and see if today will be the day to come home.
Fingers crossed!
Sunday, June 21, 2009
another round of asthma . . .
Well -- Tyler was home with us for exactly one week and doing very well.
Then Friday morning he woke up following a very quiet, peaceful night.
And BOOM! The asthma hit him like a rock.
We got him back to the hospital and onto the ventilator for a short time and the asthma seemed to quiet down a bit.
Now he's back on the mist/O2 collar with C.P.A.P. at nighttime.
We just need to figure out what is causing the asthma attacks or bronchospasms he is experiencing.
All medications have remained the same and our household is just as it has been for the past 20-years.
Hopefully we'll get this figured out soon.
Tyler is not a happy camper right now. He's cranky, irritable and just plain grumpy.
Wish us luck.
Then Friday morning he woke up following a very quiet, peaceful night.
And BOOM! The asthma hit him like a rock.
We got him back to the hospital and onto the ventilator for a short time and the asthma seemed to quiet down a bit.
Now he's back on the mist/O2 collar with C.P.A.P. at nighttime.
We just need to figure out what is causing the asthma attacks or bronchospasms he is experiencing.
All medications have remained the same and our household is just as it has been for the past 20-years.
Hopefully we'll get this figured out soon.
Tyler is not a happy camper right now. He's cranky, irritable and just plain grumpy.
Wish us luck.
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